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Down with Lyme | The Big Day

Tuesday, 3rd May, 2016

The Big Day

Sitting in the warm and very pleasant looking waiting room, my heart once again starts to beat loudly. My hands are freezing cold but annoyingly start to break out in a sticky sweat that I keep wiping away with a face towel. I fill in the ‘New Patient’ forms with a trembling hand with my writing appearing shamefully illegible. I feel embarrassed by my nervousness and look around to see if people are giving me strange looks. There is no-one around, except for the staff who are extremely friendly and welcoming. I visit the toilet one more time, frustrated that my bladder is working over-time this morning. I take deep breaths to calm myself down and reduce my anxiety. Nothing seems to work.

Our appointment is for 9am but we arrived 45 minutes early to allow ourselves enough time. I take a folder out from my bag, which contains all of my medical notes from the past year and start reviewing everything once again. There is no point, as my mind seems numb and unable to absorb any more information. I feel afraid that I will forget everything and fail to convey my most important problems during the consultation. My body starts to shiver and I can feel my blood pressure shooting up in anticipation of meeting the most revered doctor in the ‘Lyme World.’

And then in a fleeting moment, I see ‘Him’ arrive at the Clinic! Like an excited child, I nudge my husband and tell him that I just saw Dr J enter the Clinic. I feel more shaky than ever and am unable to sit still and keep moving around. I am now just minutes away from meeting the ‘Man’ who’s going to save my life and tell me what is wrong in my body. I wait with great impatience for my name to be called out.

After a few more minutes, I hear my name being finally called out and it is time for my vital signs to be taken. My blood pressure was indeed very high. I jokingly tell the nurse that it’s all due to stress and the great eagerness of meeting with Dr J. The nurse leads us to a consultation room where we are asked to wait for Dr J. At long last, I see Dr J quietly entering the room holding a thick file bursting with my medical notes. Both my husband and I jump with joy from our seats yearning to greet this highly distinguished yet humble doctor.

For the first time, my medical history is taken seriously and I am treated with respect and dignity. My very bizarre and complex set of neurological symptoms are not frowned upon but instead are understood and explained to me in correct medical terms. I am given a full and thorough medical examination, which would put most Neurologists and General Doctors to shame. At no point is my weight made an issue off and all of my aches and pains are acknowledged. During the examination, many other important signs are also noted about my failing body, which had never been picked up before by any previous doctors and consultants.

This is a doctor who is least daunted by my complicated issues and everything about him instils me with great confidence and hope. As well as Borrelia, I am also for the first time clinically diagnosed with the co-infections, Babesia, Bartonella, Mycoplasma, Chlamydia Pneumoniae, Protomyxzoa Rheumatica and Biofims. In order to get well, I am told that the malaria-like parasite will need to be tackled first, as that is greatly hindering my progress. I am strictly told however, that I am in no position at the moment to start with aggressive antibiotic therapy. We first need to work on ‘stabilising’ my incredibly fragile nervous system and get it ready to cope with treatment. I am given detailed advice on the supplements to take as well as being told the importance of detoxing whilst on treatment.

My treatment plan is issued and I hold on to it tightly refusing to let it out of my view for even a second! The consultation ends on a positive note and tears of relief stream down my face. For the first time, I feel that a great burden has been taken off from my shoulders and I find myself feeling incredibly ‘lighter’ and unusually optimistic. With renewed energy, I walk out from the consultation room confident that finally, I am on the right path to recovery.





1 comment on “The Big Day”

  1. Jim says:

    I could not refrain from commenting. Very well written!

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